    You don’t have to be alone if you’re coping with your cancer. Online and other kinds of support groups throughout the country connect you to other people with cancer. Through personal stories, practical advice, and even humor, you can gain perspective and discover ways to effectively deal with your illness, your treatment, and the changes in your life. Click on one of the links below to get more information. Acute Lymphoblastic Leukemia Following is a list of organizations that may provide advocacy, support group information, or other resources that can assist you and your family in coping with your cancer. Acute Lymphoblastic LeukemiaThe Leukemia and Lymphoma Society The Leukemia and Lymphoma Society is the world’s largest voluntary health organization dedicated to funding blood cancer research, education, and patient services. OncoLink: Abramson Cancer Center of the University of Pennsylvania Online Resource OncoLink is a comprehensive information source, including links to online discussion groups. Breast CancerThe Breast Cancer Fund The Breast Cancer Fund identifies—and advocates for the elimination of—the environmental and other preventable causes of breast cancer. BreastCancer.org BreastCancer.org is a nonprofit organization dedicated to providing the most reliable, complete, and up-to-date information about breast cancer. The Breast Cancer Research Foundation The Breast Cancer Research Foundation is a not-for-profit organization whose mission is to achieve prevention and a cure for breast cancer in our lifetime by providing critical funding for innovative clinical and genetic research at leading medical centers worldwide, and increasing public awareness about good breast health. The Breast Cancer Site The Breast Cancer Site was founded to help offer free mammograms to women in need—women for whom early detection would not otherwise be possible. The site has established itself as a clear leader in online activism and in the fight to prevent breast cancer deaths. FORCE (Facing Our Risk of Cancer Empowered, Inc.) FORCE is an organization for those at increased risk of breast/ovarian cancer due to positive family history and/or BRCA mutations. Patients can gather information and support, communicate with others, learn through librarian-selected links, and locate specialists. Look Good...Feel Better Cosponsored by the Cosmetic, Toiletry, and Fragrance Association, the American Cancer Society, and the National Cosmetology Association, this public service program teaches women ways to cope with appearance-related side effects of cancer treatments. National Breast Cancer Foundation, Inc. The National Breast Cancer Foundation increases awareness of breast cancer and saves lives through education and by providing mammograms for those in need. The National Women’s Health Information Center OWH works to improve the health and well-being of women and girls in the United States. OncoLink: Abramson Cancer Center of the University of Pennsylvania Online Resource OncoLink is a comprehensive information source, including links to online discussion groups. SHARE: Self-Help for Women with Breast or Ovarian Cancer SHARE is a not-for-profit organization providing information hotlines for breast and ovarian cancer in English and Spanish; peer-led support groups; and wellness, education, and advocacy programs. SHARE contributes to awareness regarding research, prevention, and early detection. Susan G. Komen for the Cure Susan G. Komen for the Cure is the world’s largest and most progressive grassroots network of breast cancer survivors and activists. Women’s Cancer Network The Women’s Cancer Network is an interactive Internet site that offers understandable medical information about gynecologic cancers, treatment options, and experimental programs. By answering specific questions, a woman will be told her risk for developing specific cancers such as gynecologic, breast, and colon cancers, and how to change those risks. Y-ME National Breast Cancer Organization Y-ME and its network of affiliates provide information and support to anyone touched by breast cancer. Cervical CancerAmerican Society of Clinical Oncology (ASCO) ASCO can provide referrals to gynecologic oncologists in your area. Cancer Risk Assessment Survey The Cancer Risk Assessment Survey is an online, interactive cancer risk assessment survey that helps identify risk level for the gynecologic cancers. Gynecologic Cancer Foundation The GCF is a not-for-profit fundraising organization established by the Society of Gynecologic Oncologists (SGO) to support ovarian cancer research and a variety of programs for patient education and public awareness of gynecologic cancers. Callers will be able to obtain a list of nearby specialists in gynecologic oncology, a nationwide directory of all SGO members, and informational literature. Look Good...Feel Better Cosponsored by the Cosmetic, Toiletry, and Fragrance Association, the American Cancer Society, and the National Cosmetology Association, this public service program teaches women ways to cope with appearance-related side effects of cancer treatments. National Cervical Cancer Coalition The NCCC, founded in 1997, is a grassroots nonprofit organization dedicated to serving women with, or at risk, for cervical cancer and HPV disease. The National Women’s Health Information Center OWH works to improve the health and well-being of women and girls in the United States. OncoLink: Abramson Cancer Center of the University of Pennsylvania Online Resource OncoLink is a comprehensive information source, including links to online discussion groups. Women’s Cancer Network The Women’s Cancer Network is an interactive Internet site that offers understandable medical information about gynecologic cancers, treatment options, and experimental programs. By answering specific questions, a woman will be told her risk for developing specific cancers such as gynecologic, breast, and colon cancers, and how to change those risks. Lung CancerAmerican Association for Respiratory Care The AARC interacts with local, state, and federal government on public policy related to respiratory care. American Lung Association The American Lung Association is a nationwide, voluntary health organization dedicated to developing programs and strategies to fight lung disease in all its forms. Lung Cancer Alliance A nationally based organization devoted to improving the quality of life of people with lung cancer through education, support, advocacy, and rehabilitation. LungCancer.org LungCancer.org provides links to various support and advocacy groups, as well as a link to information about various methods of screening for cancer. OncoLink: Abramson Cancer Center of the University of Pennsylvania Online Resource OncoLink is a comprehensive information source, including links to online discussion groups. Lymphoblastic LymphomaThe Leukemia and Lymphoma Society The Leukemia and Lymphoma Society is the world’s largest voluntary health organization dedicated to funding blood cancer research, education, and patient services. OncoLink: Abramson Cancer Center of the University of Pennsylvania Online Resource OncoLink is a comprehensive information source, including links to online discussion groups. Non-Hodgkin’s LymphomaThe Leukemia and Lymphoma Society The Leukemia and Lymphoma Society is the world’s largest voluntary health organization dedicated to funding blood cancer research, education, and patient services. Lymphoma Information Network The Lymphoma Information Network Web site is hosted by a lymphoma survivor and offers comprehensive information and resources on lymphoma, presented in an easy and logical format. Lymphoma Research Foundation The Lymphoma Research Foundation helps those diagnosed with lymphoma and their loved ones by providing valuable information about the disease, diagnostic techniques healthcare practitioners use, and treatment options. OncoLink: Abramson Cancer Center of the University of Pennsylvania Online Resource OncoLink is a comprehensive information source, including links to online discussion groups. Ovarian CancerAmerican Society of Clinical Oncology (ASCO) ASCO can provide referrals to gynecologic oncologists in your area. Association of Cancer Online Resources The Ovarian Problems Discussion List is an e-mail support group. Conversations! The International Newsletter for Those Fighting Ovarian Cancer This monthly newsletter, written by an ovarian cancer survivor, reports on treatment options, trials, coping skills, and early-detection strategies. Conversations! offers humor and an upbeat tone. A networking service to match women in similar circumstances is available. FORCE (Facing Our Risk of Cancer Empowered, Inc.) FORCE is an organization for those at increased risk of breast/ovarian cancer due to positive family history and/or BRCA mutations. Patients can gather information and support, communicate with others, learn through librarian-selected links, and locate specialists. Gilda Radner Familial Ovarian Cancer Registry This registry tracks families with a history of ovarian cancer and offers a help-line, education, information, and peer support for women with high risk (family history) of ovarian cancer. Look Good...Feel Better Cosponsored by the Cosmetic, Toiletry, and Fragrance Association, the American Cancer Society, and the National Cosmetology Association, this public service program teaches women ways to cope with appearance-related side effects of cancer treatments. National Ovarian Cancer Coalition, Inc. The NOCC provides support to those dealing with a diagnosis of ovarian cancer. OncoLink: Abramson Cancer Center of the University of Pennsylvania Online Resource OncoLink is a comprehensive information source, including links to online discussion groups. SHARE: Self-Help for Women with Breast or Ovarian Cancer SHARE is a not-for-profit organization providing information hotlines for breast and ovarian cancer in English and Spanish; peer-led support groups; and wellness, education, and advocacy programs. SHARE contributes to awareness regarding research, prevention, and early detection. Women’s Cancer Network The Women’s Cancer Network is an interactive Internet site that offers understandable medical information about gynecologic cancers, treatment options, and experimental programs. By answering specific questions, a woman will be told her risk for developing specific cancers such as gynecologic, breast, and colon cancers, and how to change those risks. General Cancer ResourcesAmerican Cancer Society The ACS is a nationwide, community-based, voluntary health organization dedicated to eliminating cancer as a major health problem. American Medical Association The AMA provides information on doctors, such as when they were licensed, their specialties, and board certifications. The Directory of Medical Specialists lists qualifications of medical doctors and should be available in medical libraries and the public library. CancerCare, Inc. CancerCare, Inc., is a national nonprofit agency dedicated to providing emotional support, information, referrals, and practical assistance at no charge to people with cancer and their loved ones. Cancer Information Service The Cancer Information Service is a national information and education network sponsored by the National Cancer Institute. Information is available in English and Spanish. CancerSociety.com CancerSociety.com is an effective tool for patients, families, physicians, healthcare professionals, and educators to gather information, discuss topics of interest with one another, and find necessary resources in a fast, effective, and accurate manner. Centers for Disease Control and Prevention The CDC is a leader in nationwide cancer prevention and control, working with national organizations, state health agencies, and other key groups to develop, implement, and promote effective cancer prevention and control practices. Coping With Cancer Magazine Coping With Cancer is a bimonthly magazine for people who have been touched by cancer. Issues include patient education articles by healthcare professionals. Corporate Angel Network The Corporate Angel Network is a nonprofit organization that finds space on corporate jets, at no charge to the patient, for cancer patients and 1 attendant/family member needing transportation for treatment, consultation, and checkups. Lance Armstrong Foundation The Foundation focuses on cancer survivorship issues for people living with, through, and beyond cancer. National Cancer Institute The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients. The NCI also provides a nationwide telephone service for cancer patients and their families and friends, the public, and healthcare professionals that answers questions and sends booklets and information about cancer. National Coalition for Cancer Survivorship The NCCS raises awareness of cancer survivorship through its publications, quarterly newsletters, education to eliminate the stigma of cancer, and advocacy for insurance, employment, and legal rights for people with cancer. OncoLink: Abramson Cancer Center of the University of Pennsylvania Online Resource OncoLink is a comprehensive information source, including links to online discussion groups. PlanetCancer.org PlanetCancer.org is directed specifically at helping young adults cope with the difficulties and issues when fighting cancer. The Wellness Community The Wellness Community provides free psychosocial support to people fighting to recover from cancer as an adjunct to conventional medical treatment. GSK has provided or may provide funding to some of these organizations. |
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